Study Of Effects Of Family-Centered Care On Quality Of Life In Parents Of Children With Cerebral Palsy

ObjectiveTo explore the effects of the nursing model of family-centered care on quality of life, mental health, satisfaction with nursing and the level of cerebral palsy-related knowledge in parents of children with cerebral palsy, and to provide basic information for the study of mental health education and support system of parents of children with cerebral palsy.Methods1ObjectsA quasi-experiment controlled design was employed.55parents of children with cerebral palsy in The Third Affiliated Hospital of Zhengzhou University from October,2010to January,2011were selected as control group through convenience sampling.55parents were selected as intervention group from February,2011to May,2011.2MethodsThe control group used the common clinical care model, and acquired convention health education. The intervention group used "family--centered care" model, including cerebral palsy-related knowledge training and video teaching, parental involvement in rehabilitation of children with cerebral palsy, forming a family club. The Self-rating Anxiety Scale (SAS), Self-rating Depression Scale (SDS), Life Satisfaction Index A (LSI-A), World Health Organization Quality of Life Scale Measure Abbreviated version (WHOQOL-BREF), Newcastle Satisfaction with Nursing Scale (NSNS) were used to assess all parents of the two groups before and after the intervention. In addition, after intervention, researcher made a comparison of the level of cerebral palsy-related knowledge in parents of intra-intervention group between before and after intervention.3Statistics analysisSPSS17.0was used to analysis the data. Mean, Std deviation, percentage were used to describe the basic data of parents and children. The two groups’scores of SAS, SDS, LSI-A, WHOQOL-BREF, NSNS were analyzed by Chi-square test, two independent-sample T test, Mann-Whitney U test and Spearman relative analysis. The significant level was a=0.05.ResultsThere is no significant difference of the data between control group and intervention group.1The comparison of indicators between intervention group and control groupBefore intervention, There is no significant difference of the scores of SAS, SDS, LSI-A, in every domain of WHOQOL-BREF between control group and intervention group(P>0.05). After intervention, the scores of SAS and SDS were significantly decreased in the intervention group compared with the control group (P<0.05). The scores of LSI-A, in every domain of WHOQOL-BREF (except subjective evaluation of overall health), NSNS were significantly increased in the intervention group compared with the control group (P<0.05). The self-controlled methods performed in the intervention group and control group. The scores of SAS and SDS were lower, and the scores of LSI-A, in every domain of WHOQOL-BREF (except subjective evaluation of overall health), NSNS were higher significantly than before intervention in the intervention group (P<0.05). There is no significant difference of the scores of SAS, SDS, LSI-A, in every domain of WHOQOL-BREF between before and after intervention in the control group (P>0.05).2The relative analysis between quality of life and mental health, satisfaction with nursing of parents of children with cerebral palsyThe Spearman relative analysis showed that the score of each domain of WHOQOL-BREF was negatively related to the score of SAS and SDS, but positively related to the score of LSI-A and NSNS (P<0.01).3The comparison of the level of cerebral palsy-related knowledge in parents of intra-intervention group between before and after interventionAfter using "family--centered care" model, in the intervention group, the rate of cerebral palsy-related knowledge of parents was significantly increased.90%of parents could follow the doctor’s advice, continue treatment in a planned way, keep in training children hand and foot, strengthen services for their children, and be patient with children (P<0.01). More than85%of parents could stay positive attitude towards children’s disease (P<0.01), and enhance the education and guidance of the abilities of activities of daily living (P<0.05).ConclusionsThe "family--centered care" model can relief parents’anxiety, alleviate parents’ depression, increase life satisfaction and quality of life, improve satisfaction with nursing during their children with cerebral palsy were in the hospital, and can provide basic information for the study of mental health education and support system of parents of children with cerebral palsy.