| Objective1.To investigate the current situation of family function,coping style and caring experience of the main caregivers of children with epilepsy,and to analyze the differences of family function,coping style and caring experience scores in general demographic data,as well as the influencing factors of caring experience of caregivers of children with epilepsy.2.To explore the relationship among family function,coping style and caring experience of caregivers of children with epilepsy,and explore the possible intermediary role of coping style between family function and caring experience,so as to provide a theoretical basis for formulating targeted intervention measures to improve the caring experience of caregivers of children with epilepsy and improve the quality of care for children with epilepsyMethodsIn this study,228 primary family caregivers of children with epilepsy in the pediatric neurology department of a third-class hospital in Linyi from August to December 2021 were selected as the research objects by convenient sampling method.The general information questionnaire,Family Assessment Device(FAD),Caregiver Burden Inventory(CBI),Simplified Coping Style Questionnaire(SCSQ)and Positive Aspects of Caregiving(PAC)were used for questionnaire survey;SPSS26.0 and AMOS25.0software was used for data processing,descriptive analysis,univariate analysis,pearson correlation analysis,multiple linear regression analysis and mediating effect verification were performed.Results1.Current status of family function,coping style and care feeling scores of caregivers of children with epilepsy(1)In this study,the total score of family function of caregivers of children with epilepsy was(138.29±16.61),including 33(14.5%)with good family function,190(83.3%)with average family function and 5(2.2%)with poor family function;The average scores of the seven dimensions of the scale from high to low were: role division(2.49±0.29),emotional response(2.36±0.44),behavior control(2.34±0.28),communication(2.31±0.36),emotional intervention(2.31±0.43),total function(2.17±0.37)and problem solving(2.10±0.43).(2)In the two dimensions of coping style,the total score of positive coping is(23.25±5.59),and the average score of items is(1.94±0.47);The total score of negative coping was(9.59±4.31),and the average score of items was(1.20±0.54).(3)The overall score of care burden(negative feeling of caring)of caregivers with epileptic children was(42.79 ± 17.40),including 73(32%)with mild burden,130(57%)with moderate burden and 25(11%)with severe burden;The average scores of the five dimensions of the scale from high to low are: time-dependent burden(2.51 ± 0.88),development limited burden(2.20 ± 0.99),physical burden(1.76 ± 1.10),social burden(1.51 ± 1.07)and emotional burden(1.02 ± 0.84).The positive feeling score of caregivers of children with epilepsy was(31.12± 7.39).The two dimensions of the scale were self affirmation(3.44 ± 0.86)and life outlook(3.51± 1.07).2.Correlation between family function,coping style and care feelings of caregivers of children with epilepsyPearson correlation analysis showed that the CBI scores of caregivers with epileptic children was positively correlated with the score of family function and negative coping style(r = 0.587,0.479,P < 0.01),and negatively correlated with the score of positive coping(r =-0.611,P < 0.01);The scores of positive feeling was negatively correlated with the score of family function,negative coping style(r =-0.246,-0.218,P < 0.01),and positively correlated with the score of positive coping style(r = 0.307,P < 0.01);There was a negative correlation between care burden and positive feelings(r =-0.297,P <0.01).3.Factors of care burden and positive feelings in caregivers of children with epilepsy(1)The results of univariate analysis showed that different age,course of disease,type of epilepsy,medication and control of children with epilepsy had significant differences in the scores of caregivers’ care burden of children with epilepsy(P <0.05);And the types of epilepsy,medication and control of children had significant differences in the scores of positive feelings of caregivers of children with epilepsy(P <0.05);(2)Multiple linear regression analysis showed that children’s age,epilepsy type,medication status and caregivers’ family function and coping style significantly affected caregivers’ care burden(P < 0.05).Caregivers’ positive coping style significantly affected caregivers’ positive feelings(P < 0.05).4.The intermediary role of coping style between family function and caring experienceCoping style plays a partial mediating role between family function and care burden,and the mediating effect accounts for 45.66% of the total effect,thereinto,the mediating effect of positive coping style accounted for 29.47% of the total effect,and that of negative coping style accounted for 16.18%.Positive coping style plays a partial mediating role between family function and positive feelings,and the mediating effect accounts for 42.28% of the total effect.Conclusions1.The family function of caregivers of children with epilepsy is at the general level,and the coping style is more positive.The care burden of caregivers of children with epilepsy was at the moderate level,and the positive feelings were above the moderate level.Children’s age,type of epilepsy,medication status and caregivers’ family function,coping style are important factors affecting the care burden of caregivers of children with epilepsy.Positive coping style is the influential factor of caregivers’ positive feelings with epileptic children.2.There was significant correlation between family function,coping style and caring experience,and positive coping style partially mediated the relationship between family function and caring experience,while negative coping style partially mediated the relationship between family function and caring burden.Therefore,taking effective measures to improve the family function of children with epilepsy and guide caregivers to actively cope with the disease is beneficial to reduce their care burden,improve their positive feelings,and improve the efficiency of symptom management. |
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