Study On Factors Affecting Caregivers’ Stressors And Coping Styles In Children With Osteogenesis Imperfecta

Objective:To clarify the relationship between Osteogenisis Imperfecta(OI)caregivers stressors and coping styles,to clarify the influencing factors of coping styles,so as to provide scientific evidence for early intervention of OI caregivers stressors and reduce the stress experience of OI caregivers.To provide better theoretical support for the implementation of family nursing of osteogenesis imperfecta.Methods:In this study,qualitative research and quantitative research were combined.Part Ⅰ qualitative research:The maximum difference method was used to select 10 OI caregivers in pediatric orthopedics department of a third grade A hospital in Shandong province.Half structured interviews was used to collect the recording data one by one.Colazzi analysis was used for data analysis to make preliminary judgment on the stressors and coping styles of OI caregivers and the relationship between them.Part Ⅱ quantitative research:From December 2019 to December 2021,investigation was conducted on OI caregivers of in designated hospitals and rare disease associations of Shandong province.The survey tools included general information Questionnaire,Coping Styles Questionnaire(CSQ),Positive Aspects of Caregiver(PAC),Zarit Caregiver Burden Interiew(ZCBI)and Social Support Rating Scale,SSRS);Pearson correlation was used to analyze the correlation between coping style of OI caregivers and social support,caregiver burden and caregiver positive feelings.Multiple linear stepwise regression analysis was used to analyze the main factors affecting coping styles of OI caregivers.Results:1.Qualitative research on OI caregivers stressors showed that OI caregivers stressors were of complex types and varied in their feelings,which were mainly manifested as:(1)In the early stage of diagnosis,OI caregivers have complex stressors,including shock,confusion,helplessness and worry.It’s hard to accept reality quickly.(2)During the treatment,the stress of OI caregivers mostly comes from the disease development of OI children;(3)During long-term care,the stressors of OI caregivers mostly come from their own psychological and physiological troubles and worries about economic burden.In the face of stressors,the coping styles of OI caregivers are different:(1)Psychological withdrawal and active acquisition of knowledge are the main coping strategies of OI caregivers when they are diagnosed early.(2)Caregivers with OI in the treatment period responded by actively changing their living habits and seeking help;(3)Long-term OI caregivers often use downward comparison coping;The interaction between stressors and coping styles is as follows:(1)the initial diagnosis of stressors affects coping styles;(2)Coping style and stressors showed interactive effects during the treatment period,and positive coping style had positive effects.2.The quantitative investigation on coping styles of OI caregivers and its influencing factors showed that social support and caregiver burden had a preliminary impact on coping styles of OI caregivers.The positive factor that affects OI caregivers is social support,while caregiver burden is the negative factor,whether OI children are the only child,education level and religious belief of OI caregivers,and economic income of OI family are the factors that affect OI caregivers coping style.Conclusions:1.OI caregivers feelings towards stressors are complex and show phased changes.Coping styles interact with stressors,and the influencing factors of coping styles are complex and diverse,which are correlated with stressors,and indirectly affect the outcome of disease in children with OI.2.The majority of OI caregivers are female,with low education level and low monthly family income.Social support is the factor that affects the positive coping of OI caregivers.Caregiver burden was the factor that affected the negative coping of OI caregivers.The educational level of OI caregivers and monthly income of OI families have an impact on both positive and negative coping,and further research is needed to determine their correlation.The influence of other factors on coping styles of OI caregivers needs to be further studied.