Research On The Remote Care Experience Of Child Cancer Caregivers

In recent years,the incidence of cancer among children in China has been rising,and issues related to childhood cancer in China have begun to receive attention.As the survival rate of childhood cancer has increased year by year,childhood cancer home care has begun to attract attention,and severe care requirements have put tremendous pressure on child cancer caregivers.The unequal distribution of medical resources in China has led to the problem of caring for children in different places.The caregivers of children who care for children in different places face many challenges.The research on children's cancer-related issues in mainland China has a narrow research field and a single research content,mainly in the medical field.There are few literatures on the care experience of children with cancer patients.Most of the subjects are children with leukemia and children with cancer.The study of off-site care experience is in a blank state.Therefore,this article conducts in-depth interviews with caregivers of children with childhood cancer who come to Shanghai for medical treatment,and then re-depicts their experiences in different places to report the care experience and life of a child care provider who specializes in child cancer.Empirical research results.This study uses qualitative research methods to interpret research data through phenomenological methods.Through in-depth interviews with 17 caregivers of non-Cultural children with cancer,they explored their psychological experience,psychological difficulties,coping styles and other care experiences during the long-term care of children.The study found that caregivers who care for children with cancer in different places face more difficulties and risks than local caregivers.In the early stage of the diagnosis of childhood cancer,children with cancer in different places have to rely on their own resources while experiencing intense psychological shocks,to find professional medical institutions for children,and to seek medical treatment opportunities for children.During the treatment period of the child,the off-site caregiver needs to re-establish the family in the city where the child is seeking medical care to take care of the seriously ill child,and overcome the economic shortage caused by unemployment,high treatment costs,living in different places,lack of nursing experience,and handling the family.Business is difficult.The caregiver of the child suffered a great test during the long treatment period and also gained post-traumatic growth during this period.When the child enters the end of life,it is the most serious crisis encountered by the caregivers of the children in different places.It is necessary to make the final medical decision for the child's life and consider the matter of post-processing.Due tothe regional differences in the distribution of medical and health service resources in China,there are geographical differences in the formal support systems that can be sought by caregivers in different places.In the face of difficulties,they need to rely on their own informal systems to support them.In view of the above research findings,this study proposes a multi-subject to take care of children with cancer in the field of social work,and through multi-subject cooperation,medical work to strengthen humane care,social work to carry out professional intervention,the public to raise common concerns,Strengthen the attention and attention of children's cancer families who receive medical treatment in different places,and support them.By promoting the development of medical social work practice,we will create better medical services for children's cancer families.