Research On The Aging Parental Caregivers’ Future Planning For Children With Intellectual Disabilities In Rural Areas Under The Care Model Of "Aging For Disability"

Any family with a disability will face problem of what happens to the disabled member when the primary caregiver,especially the parent,is no longer able to provide care as he or she once did.Although there has been a gradual focus on the care needs of families with disabilities,with the provision of living allowances for the disabled in difficulty and care allowances for the severely disabled,it still does not alleviate the concerns of these families about their future.This concern is especially evident among "Aging for Disability" families.Therefore,it is necessary to plan for the future in detail in order to gradually resolve the concerns,and the concept of"Future Planning" has been introduced.Based on the above-mentioned background,the author studied the future planning of "Aging for Disability" families in rural areas and the disabled members here mainly refer to persons with intellectual/mental disabilities.The research questions in this paper are:first,what is the mindset of rural elderly parents regarding the future placement of these children with intellectual/mental disabilities,i.e.,do they have a plan?What kind of planning is there?How is this mindset constructed in a social constructivist perspective?Second,what are the specific options or actions that elderly caregivers can take to plan for their future placement?What suggestions can we make to address the current dilemma of future planning?In terms of the explanatory framework,this study chooses a social constructivist perspective,considering "mindfulness" as a subjective view and concept,and analyzing what factors influence the process of its construction.In particular,"mindfulness" is placed in the context of society,examining how individuals are influenced and bound by social knowledge.To give more prominence to the importance of the construct process,this paper also explores the specific action options for future placement planning for these families in order to better target possible policy recommendations.For the research method,this paper adopted a length interview method,in which the author identified 15 elderly caregivers whose children were mentally/psychologically disabled and three staff members of the institution for interviews with the help of a service center for the mentally disabled.The study first explored the basic situation of this type of families.Among the rural "Aging for Disability" families,there are many non-one-child families,and the disability of children has a certain impact on the marriage relationship,and many families also face expenditure poverty;members with intellectual/mental disabilities have higher disability levels and multiple disabilities,which affect their independent living;most of the congenital disabilities are unmarried,and more of the acquired disabilities are married;members with disabilities stay at home for a long time,and rarely receive institutional care services;Women among older caregivers have greater caregiving responsibilities and face significant physical and emotional stress.In terms of mindset,overall,the majority of primary caregivers in families perceive future planning as disappointing and unhelpful.Families who do not have a future planning often feel that future planning is not feasible,adds anxiety,is unnecessary,or that there is no help in co-designing future planning.Among families with future planning,there are also large gaps in the timing of the start of future planning,the participants in the planning,and the disclosure of the planning,and there is also great concern about whether their set future planning will be fulfilled in the future,believing that the future of children with disabilities is still an issue of concern.In terms of the factors influencing the mindset,the author argues that these families’ future planning mindset is mainly influenced by social interaction,social reality,and personal expression.First,the social interactions of people with disabilities,including discrimination in social interactions,close interdependence in interactions with elderly caregivers,and professional tensions in interactions with service providers,make for difficult choices in considering their future lives.Secondly,the social reality is that within the family,caregivers are under tremendous pressure due to their sense of family responsibility and view future planning as a private family matter,but outside the family,the lack of trust in social services and the fact that the social system is still in the bottom-up stage also make it difficult to shape future planning.Third,in terms of personal expression,among the three main actors of future planning,disabled members are reluctant to leave home,elderly caregivers have separation anxiety,and potential future caregivers also bear the"intergenerational transmission" of caregiving stress due to the lack of planning.All of the above has led to a mindset of disappointment,powerlessness,difficulty and sadness in future planning.The mindset,no doubt,has also influenced the specific choice of future planning content.In terms of planning content selection,elderly caregivers consider more about the future care of the disabled member,division of assets,housing issues,handling of future emergencies,future financial resources and security,and development of self-care/self-sufficiency.These areas are broad in scope and are relevant to the ability of the disabled member to receive appropriate care and secure a normal life after leaving the family.Based on the choices made by elderly caregivers for future planning,the author has also put forward relevant policy suggestions.Referring to the development experience of foreign countries and combining the problems revealed in the process of constructing technology,the author believes that in order to have a rational design for future placement planning,firstly,families should change their concepts.Secondly,society should provide legal protection for future placement planning.Thirdly,the policy should gradually change to family-friendly.Fourth,the family property trust and insurance business should be used to provide sufficient financial security for the future.Fifth,social work should be guided to intervene in this field to help develop individualized planning.Sixth,a multi-participation service system for future planning should be built according to certain steps.Through the intervention of the above personal and social paths,it is believed that the specific paths of the construct can be better dismantled.Based on the above,this paper will explore the factors influencing this mentality,i.e.,how it is constructed as a subjective perception in the context of society,based on the understanding of the mindset of future planning for elderly caregivers in rural"Aging for Disability" families.In addition,we also propose relevant rationalization suggestions to better address the future survival challenges of people with intellectual/mental disabilities in these families,taking into account the specific choices and actions of these families regarding future planning.