Development And Evaluation Of Quality Of Life Scale On Extremity Disability Children

ObjectiveThe purpose of this study is to find a more suitable scale for children with extremity disabilities. This scale can be used to evaluate the current health condition of children’s quality of life, and to analyze rehabilitation effects. and to analyze reliability, validity and discrimination of this Scale. It can provide a more effective assessment tool to improve the quality of life and the ability to participate in society for children with extremity physical disabilities.Methods(1) The entry pool formation stage: through the use of literature research, Focus Group Discussion(FGD) discuss the constitute for children with common modules and specific modules of extremity disability children Quality of Life Scale;(2) The initial selection scale formation stage: collecting expert advice questionnaire about various amendments for the structure and language,and building the database. By using modified Delphi method and testing two rounds of trial, we can examine whether the scholars are positive or not, the views are the same or not, and the scholars harmony is authoritative or not. Then amending the structure and language of screened pool, form a quality of life initial selection scale of children with extremity disabilities;(3) The evaluation stage scale: by using the on site survey party to recovery data about extremity disabled children, by using the SPSS17.0 for split-half reliability, Cronbach αcoefficient, test-retest reliability.to analyse confirmatory factor by using LISREL8.70 analysis, fby using the project multilog7.03 to analysis the item response theory(IRT), and we can know the scale of the reliability, validity, and distinction.Results(1) Forming a more perfect " Quality of Life Scale of extremity disability children." by study design. There are 6 fields dimension constituting 38 entries. They are Scale-specific modules into physiological functional areas(PHF), emotional function fields(EMF), social domain(SOF), the role of functional areas(ROF), children with disabilities common module(DIS-GM) and extremity disabled children(DIS-SME). Because the children with different ages and levels in cognitive ability to understand are differences,so we group the scale by extremity disabled children into two different ages they are 5-7 years and 8-16 years, and in accordance with the evaluation of the different ways,the scales divided into self-rating scale and others rating scale, according to the rating scale and the scale is divided into three and five, culminating in the 5-7-year-old physically disabled children Quality of Life Scale, parent questionnaire and 8-16 years old limb Determination of the residual mass child survival Scale 3 separate scale.(2) Coordination and authority: by using the Delphi method, we calculated the importance of the second round of expert consultation and coordination accuracy Kendall coefficients which are 0.258 and 0.286; two expert consulting authority coefficients were0.7865 and 0.7800.(3) Reliability: Extremity disability children Quality of Life Scale has good reliability.Its half reliability is 0.765, test-retest reliability is 0.838, Cronbach α coefficient is 0.909.(4) Validity:Extremity disability children Quality of Life Scale has good validity.(1)Determination of extremity disabled child survival quality scale generation entry pool is based on two domestic scale which has been more mature, and good content validity;(2) It has good correlation dimension, physiological functional areas(PHF) The correlation coefficient r was 0.649 above; emotional function fields(EMF) the correlation coefficient r was 0.545 above; social domain(SOF) of four interrelated digital content was above 0.507 r; part of the role of functional( ROF) correlation coefficient r these were in acontent more than 0.527; correlation coefficient r information for children with disabilities common module(DIS-GM) 10 inside 3 content was 0.5 above; children with extremity disability-specific module(DIS-SME) 4 pieces of information in the correlation coefficient r were 0.768 above;(3) construct validity, in addition to children with disabilities in common territory CFI index was 0.75,each other territories CFI index were greater than 0.95, the overall model results.(5)discrimination: discrimination aspect, each entry is preferable ICC curve distribution,entry contains a large amount of information, the error is small.(6) Feasibility: Institute survey time spent basically stable at about 15 minutes, it has high feasibility.ConclusionsDetermination of the quality of life scale on extremity disability children has good reliability, validity, and feasibility of discrimination. Quality of life for children with extremityl disability measurement scale can be used to evaluate the quality of life for children with extremity disabilities, and it has good possibilities to carry out and has good discrimination, it can be a tool for children with extremityl disability to determinate the quality of life.