Survey Of Family Needs Of Children With Leukemia And Case Intervention Study Of Palliative Care

ObjectivesThe study consisted of two parts:Firstly,a survey was conducted on the caregivers of children with leukemia through self-designed questionnaires and scales to understand the status and needs of leukemia children and families;and secondly,to provide a palliative care plan for children.Case intervention study is conducted on children with leukemia and their families to relieve psychosocial stress and to meet their needs.Methods1.Investigation study:Firstly,review the literature on the needs of children with leukemia and their family,palliative care treatment,etc.Secondly,the researchers conduct participatory observation on the medical environment of children with leukemia in the Department of Hematology,and through semi-structured interviews with caregivers and medical staff to understand the actual needs of children and families,and develop the questionnaire for the general conditions and needs of children with leukemia and their families;Finally,lined with the Family Hardiness Index,Coping Health Inventory for Parents and The Positive and Negative Affect Scale to complete the survey.2.Intervention study:First,refer to"Children's Palliative Care Practice Handbook"and"Children's Palliative Care in Africa"to develop palliative care intervention programs for leukemia children and their family;secondly,use this palliative care intervention programs model to conduct case intervention study.Results1.Investigation study:(1)There was a statistically significant difference in the gender,age,and different stages of chemotherapy with let go of fears and responding to treatment needs positively(x~2=21.46,p<0.01;x~2=27.60,p<0.01;x~2=26.89,p<0.01);different ages children had statistically significant difference with learning how to communicate with children(x~2=23.67,p<0.05).(2)CHIP-1 was the most frequently used coping style among caregivers of children with leukemia;most of the 10 coping styles used were from the CHIP-1 scale;control and challenge are the highest score in the family hardiness index;positive affect score was 3.28±0.84,and negative affect score was 2.51±0.80.(3)Coping health inventory for parents,family hardiness,and negative affect were statistically significant in the caregiver's gender(p<0.01,p<0.05);coping health inventory for parents and CHIP-1 score,family hardiness score and average score and positive and negative affect score had statistically significant difference in the age of caregivers(p<0.01);there were statistically significant differences of parental coping styles,family hardiness,and positive and negative affect in gender,age,residence and stages of chemotherapy(p<0.01,p<0.05;p<0.01,p<0.05;p<0.01;p<0.01,p<0.05;p<0.01;p<0.01).(4)Family hardiness and all dimensions,coping health inventory for parents,CHIP-1,CHIP-2,and positive affect were positively correlated(p<0.01);negative affect and family hardiness and all dimensions,coping health inventory for parents,positive affect were negatively correlated(p<0.01);CHIP-3 and coping health inventory for parents,CHIP-1and CHIP-2 were positively correlated(p<0.01,p<0.05).(5)The age,CHIP-1,CHIP-2,positive and negative affect of children were entered into the regression equation and the difference was statistically significant(normalized?=0.112,p<0.05;normalized?=0.444,p<0.01;Normalized?=0.148,p<0.05;normalized?=0.192,p<0.05;normalized?=-0.199,p<0.05).Age,CHIP-1,CHIP-2,and positive affect were positive predictors of family hardiness in children,and negative affect were negative predictors.2.Intervention study:(1)Compared with post-intervention and post-delay post-intervention,the negative affect of parents were reduced;coping health inventory for parents,family hardiness,and their respective dimension scores were improved.Parents of children had the lowest negative emotions after intervention;CHIP-1,CHIP-2,CHIP-3,responsibility,and positive affect all increased.(2)Children's fear of medical care was reduced and their personality is improved;the physical and psychological pressure of the mother were relieved;the psychological pressure of the father was alleviated,and the relationship between the husband and wife was improved;the daughter's physical and psychological conditions and the relationship between brother and sister has been improved.Conclusion(1)There is a common need for leukemia children and their families,but there are differences in the gender,age,and stages of chemotherapy.(2)The family hardiness,coping health inventory for parents,and positive and negative affect of the caregivers of children with leukemia are at an intermediate level,and are significantly different in terms of gender,age,family hardiness,education level,and medical insurance status.(3)Children's age,positive affect,CHIP-1 and CHIP-2 can positively predict the children's family hardiness,and negative affect can negatively predict the children's family hardiness.(4)Case interventions for palliative care have a certain effect on the improvement of leukemia children and family status,and the intervention effect is good.